Colin Farrell's Heart-Wrenching Decision: Sending His 21-Year-Old Disabled Son to Long-Term Care – The Inside Story
Image credits: People
Cerebral palsy is a non-progressive motor disorder caused by brain injury, resulting in motor impairments like poor balance, difficulty with coordination, and muscle weakness.
On the other hand, Angelman Syndrome is caused by a genetic mutation of a specific gene—UBE3A—and comes with additional behavioral symptoms like seizures, frequent laughing, and speech problems.
Angelman Syndrome’s most notable symptom is its patients tendency to spontaneously laugh and be excited
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“That was a downer for sure,” Farrell said of the initial diagnosis, but then James displayed the characteristic frequent, spontaneous laughter present in patients with Angelman syndrome.
“The doctor saw that James was laughing a lot and doing this movement—he waves his hands,” Farrell explained.
Image credits: People
Unlike conditions such as Autism Spectrum Disorder, which are diagnosed through clinical observation, Angelman Syndrome requires thorough genetic testing using either blood or saliva samples.
These tests identify problems with the UBE3A gene, and are able to accurately confirm the diagnosis.
Image credits: People
At 21, James is nonverbal and requires round-the-clock support for daily activities, making regular, specialized monitoring necessary to ensure his well-being. “I’ve been in the back of ambulances, I’ve been in the hospital with him,” Farrell said.
“Thankfully, James hasn’t had a breakthrough seizure now in about 10 or 11 years.”
For the actor, sharing his experience with James is a way to connect with parents going through similar struggles
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Managing James’ health involves intensive caregiving and medical management, which the actor illustrated by sharing an anecdote about one of his son’s most severe seizures.
“I’ve done Diastat (also known as Valium, a sedative) up his rectum to get him out of a seizure that lasted longer than three minutes,” the actor shared. “Finding the right amount of medication that doesn’t have adverse effects—that’s all very tricky business.”
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Despite the challenges, Farrell was proud to announce that his son was made meaningful progress.
“When he started feeding himself for the first time, his face looked like a Jackson Pollock by the end of it,” he laughed. “But he gets it in. He feeds himself beautifully. I’m proud of him every day, because I just think he’s magic.”
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One such magical moment was the powerful memory of James taking his first steps just before his fourth birthday.
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“It was so profound,” he told People Magazine. “I’ll never forget just the face of determination on him as he walked toward me. He took, like, six steps, and I burst into tears.”
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For Farrell, sharing James’ triumphs and challenges has an important objective: inspiring other parents going through the same ordeals to be strong.
“When you’re the parent of a child with special needs, it’s important to feel that you’re not alone,” he said.
“Great parenting.” Netizens took to social media to reflect on Farrell’s difficult decision
