The Shocking Truth Behind 77 Medical Conditions Men Rarely Face—And Why They’re Almost Always Overlooked
Edit: So, this really blew up and I‘m very happy about the helpful answers or the people who wrote that I helped them find out their disease or that someone finally mentioned it.
I wanted to give you the hint, that there‘s a sub reddit, where you can find more people with HS: r/Hidradenitis.
I had an IUD inserted a few weeks after my daughter was born. Over the course of the next four months I repeatedly went back to the doctor because it *hurt*. She kept telling me it can’t hurt. The fifth time I saw a different doctor. The IUD had implanted and of course needed to be removed.
When I think about it now I’m still confused about my behavior. It hurt, it hurt from the moment it went in, I knew it hurt, but I walked away from four separate appointments trying to convince myself it didn’t because someone said it didn’t.
Trigeminal Neuralgia. I’ve had gall bladder issues and unmedicated childbirth. This is so horrific when I’m having a flare I don’t even know how I function at all. Feels like my face/ear/head are all being s**bbed and lit on fire at the same time.
Gallbladder attack was worse than labor or unmedicated childbirth. Never have I vomited from pain before. I would not wish that on my worst enemy.
Sickle cell anemia. A friend of mine has it and is pretty much guaranteed to be hospitalized every month. Hearing her cry on the phone and saying that morphine isn’t working and that the staff wouldn’t give a dilaudid shot because they thought she was d**g seeking is heartbreaking.
Interstitial cystitis – most people don’t know this is a thing and the Cleveland clinic estimates up to 12M people have it in the U.S., it impacts women more.
Imagine if you felt like you were having a UTI…pain, urgency, the whole thing, except nothing shows up in cultures, you have to figure out what’s going on so a s**t ton of trial and error. Is it allergies/diet? Autoimmune? Is my bladder damaged from an actual UTI previously? Medication?
Very few meds are on the market to treat it, and some treatments are painful like bladder instillations and hydro distension.
People will go years (myself included in that) with minimal to no answers while dealing with pain and discomfort. Some folks even go on disability because they can’t leave their house because every time they need to pee it’s a painful ordeal.
Reconstructive jaw surgery. I’m three years post-op. They had to disconnect my jaw from my spine and skull, like I was a human IKEA project, and then had to rebuild and replace my entire jaw and half my face using custom titanium prosthetic hardware. Surgeons wire your mouth/jaw shut for the first three months or so, and you’re forced to “eat” through a special syringe. And by “eat” I mean consume…… liquids only…… for THREE FREAKING MONTHS. I love chocolate pudding and smoothies just as much as the next person, but by day 4-5 of ONLY consuming pudding, broth, smoothies, or apple sauce, the desire to smash cups of pudding against the wall intensifies ***very*** strongly.
Oh, and I also had to endure it during the height of the pandemic, and I’m also immunocompromised due to an autoimmune condition. The universe decided to throw COVID-19 in the mix too, but because of my jaw surgery, I wasn’t allowed to blow my nose. I was basically a leaking, human faucet for like three months.
MD here. Nasogastric (NG) tube, which goes through your nostril, down your esophagus into your stomach, is super painful and uncomfortable. I lost a bet in med school and had to insert one in myself…it was absolute hell.
Ehlers-Danlos syndrome, I have it and the pain hasn’t been able to be controlled in any way so far.
My joints dislocate or subluxate, I get terrible nerve pain , horrific GI pain during a fair and so much more.
Also period pain and vaginal ultrasound.
NorraVavare:
Ehlers Danlos Syndrome. We experience so much pain we can function at levels that sound impossible.
I grew up thinking it was normal to dislocate my knees by walking. Sure it hurts to pop it back in, but no one ever noticed it was happening. If I said something was hard or hurt, I got told it was normal and to suck it up. I found out at 32 my knees should have never done that. Or my thumbs, toes, and shoulder. Oh yeah and its not supposed to hurt your stomach to eat. Choking on water 5 times a day or asperating rice regularly isn’t normal either.
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